Monday, November 16, 2009

No Response From Famous Radio Show Host

I must admit, our response for a young kid who is gravely ill and needs help has been at best, dismal.

I sent out a general appeal on the Internet and we are getting no response. No interest, no one cares about Eduardo. Why the apathy?

I sent a persona email to Eduardo Sotelo, but have not heard a word back. Sad to see that. I have had a personal experience with Eduardo. I know he has a good heart but maybe the money got in the way?

Eduardo Salazar Rivera is an 11 year old with HLH. He was just diagnosed with this ugly and rare illness and is in a battle for his life. His parents must figure out a way to come up with an immense amount of money or they could lose Eduardo.

HLH is an autoimmune disease which strikes 1 in a million children. There is an aggressive treatment for this illness, but it costs a mint and likely is not available in Mexico.

Eduardo's friends in the US, Tim Paynter and Erik Kennedy want to give Eduardo the chance to come here. There are also HLH clinics in Argentina and Sweden. The disease is so rare it is hard to find a hospital with doctors who really know their stuff.

Meanwhile, Eduardo has marginal improvement after the initial administering of Gamma Globulin. It is not enough according to the HLH people. But I am not a doctor, I am a guy with a big heart and a lot of prayers. I hope you will join me in those prayers because it seems like god is the only one watching out for us, Piolin isn't, will you?

Please send your donations to
Tim Paynter
Attorney at Law
120 South Kalamath Street
Denver, CO., 80223

Keep following us on "Free Press Release" as these guys seem pretty open to getting the information out. We just got censored for saying what is the truth.

Their general webpage is:


Everyone has something they don't want. If you have a "thing" send or bring that, we will stick it on eBay. You can watch to see how much it brings!

The latest news, Eduardo is out of surgery after hemorrhaging last night. I can see the faces of mom and dad as they agonize over the terrible struggle thier young one is fighting. Please keep this kid who dreams about being a soccer star in your prayers and meditation. Right now there don't seem to be many other options!

Saturday, November 14, 2009

Guarded Improvement - Funds Still Needed


I am happy to report young Eduardo Salazar Rivera is continuing to improve tonight in the Children't Hospital in Durango. I got off of the line with one of the relatives and she sounded encouraging.

Eduardo has started on his treatment of Gambloulin which he is taking to combat his fight against HLH, a hereditary disease which strikes mostly those under 18 years of age. Eduardo fell ill with the vicious syndrome about 30 days ago. The time before onset and death is usually 30 to 60 days, according to sources. It appears he may have gotten to the hospital just in time!

Our concern for Eduard is his continued access to medical care and to the medications he needs. We pray for his cotinued improvement and ultimate recuperation. Our concerns, of course, are for a relapse, which often occurs in many illness after the patient initially ralley. Let's pray that is not the case for Eduardo.

The family is once again pondering whether it is wise to bring Eduardo to the US, and we respect their decision. Whether or not he comes here, he has a tough road ahead of him and will need your continued support.

Send your emails to eduardoenvivo@gmail.com. We are actively seeking donations to assist Eduardo in the high cost of medication and medical care. Please contact us if you are willing to donate.

Uncle Tim

Gamma Globlulin Helping -- Money is Short Family In Crisis


The response for help with Eduardo Salazar, a victim of HLH, a rare childhood disease has been slow. For whatever reason we have been unable to capture the hearts of the Amercian people for a bright little boy fighting for his life in Mexico.

The good news is Eduardo is responding to the Gamuglobulin. The results are encouraging but because he has an underlying disease which is a derivitive of the Epstein Barr Virus, as we understand it, experts in HLH recommend a more aggressive therapy regimen. That will be very expensive.

The first $400 needed for his treatment was easily raised. With each passing day getting the $400 together is increasingly difficult. We would like to help his family out as well. They are wonderful people trying to care for a terribly sick child while putting food on the table for the rest of the children.

We are hoping to bring Eduardo to the US where he can get more advanced care. That is an expensive proposition, and requires some expertise we may not have. Getting through immigration is never easy. I am sure it can be done but it must be done quickly in Eduardo's case.

If your heart goes out to this little kid who one day wants to be a soccer star then send me an email. We need money, of course. We also need volunteers to bring the message to other compasionate people, to help us with Eduardo, and to say a little kid in a far away place counts, too.

Funds may be sent to: Eduardo Salazar Rivera, c/o Tim Paynter, 120 South Kalamath St. Denver, CO., 80223.
Are you willing to volunteer? Send us a note telling us what you can do! Eduardo would love to hear from you as well, if you can't speak Spanish we will have it translated! eduardoenvivo@gmail.com - translates to Eduardo in life.

The follwing is a picture of the chapel glass and words of inspiration at the Children't Hospital in Denver where we hope to bring Eduardo.
Spirituality is a pathway to meaning, hope and inner peace. e


Thursday, November 12, 2009

11 Year Old Eduardo Waits for Lifesaving Meds - Can Piolin Por La Manana Help?



11 year old Eduardo Salazar lies in a hospital bed tonight waiting for his friends in America to raise money for medication he needs to live.


Family and friends say withoout the help of someone with a lot of clout like Radio Star Piolin Por La Manana, his chances are poor.

"It is an illness that hits one in a million" said close family friend Tim Paynter, an attorney in Denver, Colorado.


"We are devastated it had to Eduardo." Paynter said.


The little boy who once had bright eyes and big dreams of becoming a soccer star shifts uncomfortably in his bed.

"Mom, when can we go home" he murmurs in a weak voice.

Eduardo will be going home very soon if his US friends are not able to come up with the $400 a day Eduardo must have". The Mexican health care system is not funded for the designer medication Eduardo needs.

"Maria Salazar Rivera is an icon to me", Paynter said. "She has lived a tough life and she never complains. When things are hectic she stays calm, ready to meet each new challenge head on. This challenge is the hardest one ever."




"We will take you home soon" she replied hiding back the tears she knows will worry her young son.




"When we got the diagnosis, Tim translated it using Google Translator." Kennedy continued. "It took us a long time to get an idea about what little Eduardo is facing."

How about Hemophagocytic Limpohistiocytoces? If that does not mean anything to you, don't fret. Most people won't recognize the name.




How about HLH? Most people have not heard about that either.




How about "Epstein-Barr Virus-associated HLH is almost universally fatal if untreated..."


"We knew Eduardo was really sick", Paynter said, tears welling in his eyes. "We didn't know that he could die within the next month or even days without treatment!"

HLH is a rare syndrome that takes two basic forms. One is hereditary and the other infectious. Gamugobulin is the drug of choice but when
the infection includes the Epstein Barr Virus, the survival rate is 20%, according to sources. With a cocktail of medications his chances dramatically improve.


"We would like to bring him to the US" said Paynter.


"I spoke to an expert in childhood diseasess" Erin Kenndy said. "He recomends a transport to a hospital that specializes in this illness, or maybe even Children's Hospital in Denver, Colorado."


Paynter and Kennedy say if you don't have money for advanced medicine in Mexico they send you home to die. Eduardo was about to be discharged when Paynter and Kennedy heard the story through a relative living in Denver.

So Eduardo's Friends starrted looking for funding. "We are hitting all of the bases", Erin said. "We all pitched in and now we are asking the community for hep."


Kennedy said Eduardo has enough money to pay for a day or two of treatment. They want to bring Eduardo to one of the few clinics that specialize in HLH. The treatment therapy in Mexico appears to be the minimum therapy recomended even at $400 a day. Eduardo's chances increase significantly with advanced medications.


It would take the clout of someone like Eduardo Sotelo, they call him Piolin Por La Manana, to help raise the money Eduardo needs, plus clear customs according to Paynter.


"My colleagues and I can make the case but it was the expert legal team and clout of television station Univision that kept Eduardo Sotelo in the country." Paynter noted.


Paynter was the "gurro expulado" on Piolin's march on washington. Paynter says secuity guard Rafa did not believe a guero could be on the pro-immigration side and the left him at a truck stop in Amarillo, Texas.


Bowing his head, Paynter said through his tears,


"We may not have the ability to raise money and open the border fast enough"


Paynter went on to say one never knows when a ittle boy is destined to find a cure for cancer when he grows up, or to be an icon for peace like Ghandi, or to help convince Mexico's mega-billionairs of the wisdom of including the poverty stricken in the Mexican economic structure.


"Who knows" Paynter said, clearing the tears from his cheeks, "We are asking the Latino media for support including another famous radio star Cu Cuy for help. "maybe Eduardo will be a famous radio star like Piolin Por La Manana!"