Eduardo clings to life, intubated, a real fighter against orphan childhood diseases

Eduardo clings to life

It wasn't supposed to be this way

I have not been staying in contact with my Salazar family contact the way I should. It is pretty clear to me, the news is not good. Sometimes it is better to not broach the topic than to bring a flood of pain and sorrow into one's heart.

Eduardo has been battling for his life. He is one tough kid! He has been intubated, if I understand the Spanish explanation. He has been rushed to the hospital. He has suffered like no child should ever suffer.

The Salazar family has given up their dream of getting Eduardo modern medical care. They were never convinced there was anything to modern medicine anyway. They still fight to feed the kids, pay the bills and take care of a very sick child.

Hence, we continue asking for donations for the family. They are noble, maybe too proud to speak out for themselves. Those who have been care takers know, it takes a lot of money to take care of the sick person. Meanwhile, the brothers and sisters take back seat. There is never enough when you make less than $400 a month.

Please send donations to:

Tim Paynter

Attorney at Law

120 South Kalamath St.

Denver, CO. 80223

The problems Blake Robbins is facing, and the problems of Pensylvania school spycams in the LMSD community, pales in comparason to this kid's problems. It puts it all in perspective. It is still an interesting story, http://lawmancolo.blogspot.com/2010/03/lmsd-folding-tent-computer-web-cam-in.html

Custom Search

Subscribe in a reader

Deadly Illness Strikes After Mono, Epstein Barr

Have you or your child had Mono? Epstein Barr? Herpes? Watch for sores on your body which may indicate you have been infected with HLH. If left untreated the illness is usually fatal within 2 months!

Hemophagocytic lymphohistiocytosis, or HLH, presents with persistent fever and paleness. There can be jaundice and neurological symptoms, such as irritability. If you or your child have these symptoms then seek treatment immediately. The sooner the illness is diagnosed the better the survival chances.

Young Eduardo Salazar has been infected with this ugly disease. You can read about his fight at the following address:

http://saveeduardo.blogspot.com/2009/12/resting-peaceful-hopeful-where-r-u.html

HLH mostly infects children and is an autoimmune disease. There is a treatment for it called the 2004 treatment protocol, which has been successful in cases brought on by secondary infection like Mono, herpes or Epstein Barr. Those who acquire the illness through heredity have a significantly reduced chance of long term survival.

More information about HLH can be found here:

http://www.cdc.gov/ncidod/eid/vol6no6/fisman.htm

While HLH is rare, it is an illness that requires vigilance. If you suspect you have symptoms don't delay in seeing your doctor!

Custom Search

Subscribe in a reader

Child Fights Rare Disease, Needs Donations of Cash, Items 2 Sell on eBay

Eduardo Salazar Rivera is fighting Hemophagocytic lymphohistiocytosis, HLH. He needs donations of money and things to sell on eBay. Please send to Tim Paynter, Attorney at Law, 120 South Kalamath St., Denver, Co., 80223.

Feel free to email me.

More information on HLH is at the following URL, Thanks, Tim.

http://www.histio.org/site/c.kiKTL4PQLvF/b.1851483/k.7487/Hemophagocytic_Syndromes.htm

More information on Eduardo:
http://saveeduardo.blogspot.com/2009/12/resting-peaceful-hopeful-where-r-u.html

Thanks, Uncle Tim

11 Year Old Needs Money For Medical Care, Rare Disease, HLH Syndrome Attacks

Eduardo Sleeps...

Sometimes all we have left is prayer

Join Us In This Story of Hope

For A Child Fighting A Rare Disease

December 05, 2009

In life there is always hope. We finally heard from the Salazar Rivera family who are watching over their son, Eduardo in El Hospital General de Durango, Mx..

It is hard to imagine how a young boy can fight so hard. Little Eduardo Salazar Rivera is still alive and kicking. He has been through two more tough surgery's as the doctors frantically try to stop his internal hemorrhaging. Eduardo is out of intensive care once again.

The sad truth, until Eduardo is able to get the

best of care his chances are not very good

Eduardo's parents want to move hospitals. They are not convinced their son is making progress where he is. The sad truth, until Eduardo is able to get the best of care his chances are not very good. But God has his plan and we have been praying for Eduardo, that God's plan be done, what ever than may be.

For those just joining our blog, little Eduardo Salazar Rivera is suffering from a rare childhood disease called HLH or Hemophagocytic lymphohistiocytosis. There are two forms, hereditary HLH and HLH acquired through secondary infection, or SHLH.

Those who acquire the illness through heredity have a poor prognosis even if they can they can force the illness into remission. Those who acquire the illness through infection, as appears to be the case for Eduardo, have up to a 70% of recovery with aggressive treatment. Aggressive treatment includes chemotherapy, imunotherapy and a bone marrow transplant.

We appreciate cash donations or gifts of

property to be sold on eBay

The family is short funds and appreciate donations, money or property to be sold on eBay. Please send to Tim Paynter, Attorney at Law, 120 South Kalamath St. Denver, CO., 80223. If you have connections to the media we would appreciate your assistance in this desperate call for help.

Sometimes all we have left is the power of prayer. I hope you will keep Eduardo in your prayers, and his family, as we are all children of God. Eduardo could be your nephew, or grandson or the child of someone you know... We can't save every child, very sad if true. We can save Eduardo, and we ask you to be part of it.

Uncle Tim

Subscribe in a reader

HLH Syndrom and Eduardo Salazar, A Child from Villa Union Durango, Hope Through Prayer,

Edaurdo Salazar Rivera is an 11 year old with Hemophagocytic lymphohistiocytosis or HLH syndrom, a frequently terminal, mostly child hood disease. While it is not a common childhood illness, when it strikes it is frequently fatal.

One of the first medical questions is whether the syndrome is passed through family lines. This is not a heredity trait one wants to have. Those who acquire this childhood disease trough heredity have substantially reduced survival chances.

Children with HLH Syndrom acquired through infection have a higher chance of recuperation. It is termed as a secondary infection because the HLH syndrom is secondary or brought on after infection, frequently through the Epstein Barr virus. The Epstein Barr Virus is a form of herpes, HHV-4. Nearly 95% of all people in the US have herpes HHV-4. Herpes acquired in adolesence is usually passed as mononucleosis.

While most of us have the Epstein Barr Virus, HLH Syndrome is not an illness you can catch. It appears there must be a genetic predisposition. Once the underlying infection is resolved the HLH may go into remission.

A great source for information for Hemophagocytic lymphohistiocytosis can be found a: http://www.histio.org/site/c.kiKTL4PQLvF/b.1851483/k.7487/Hemophagocytic_Syndromes.htm

Eduardo Salazar appears to have secondary HLH. My friend Erin Kennedy of Castle Rock, Colorado, along with the Salazar family, have been trying to get Eduardo to one of the few medical specialists associated with HLH Syndrome. This is why we reached out to the powerful Latino media outlet Univision, and some of their popular hosts, El Gordo y La Flaca and Piolin Por Manana. Eduardo Sotelo has a heart of gold and we thought our Eduardo's struggle might hit home for Sotelo.

Every child deserves the right to live. Children from Villa Union, Durango, Mexico are no exception.

Tim Paynter is an attorney and civil rights advocate fighting for equal treatment for all, justice through government and children's rights.