Resting, Peaceful, Hopeful, Where R U? Childrens Diseases, Charity

What do you do when your child has a likely terminal illness? What do you do when the research options are limited? What do you do when the medical diagnosis for a young boy is poor, a child who has yet to live much life falls gravely ill? What can you do for a mom or dad lost in their grief, in their own sense of powerlessness, thier desire to give everything...but who don't have what is needed, money, power, respect to help their son?

The Salazar Rivera family has done what they can. I hope they are proud. As friends of the family we appealed for public support. Our plan was to bring this young son of Mexico to St. Jude's Hospital where no child is refused. Our plans have gone awry.

Our appeal to Latin America radio stations for help, our appeal to Univision and people with power have gone unheard. The plight of a poor boy from Villa Union Durango Mexico has been lost on a world interested in more important things...money, prestigue, a realization not everyone can be helped, so why help anyone? Why help Eduardo?

Do I sound bitter? Frustrated? Angry=afraid? Probably all of these apply. I can only imagine how a mother and father crying for their young son must feel...

But we have some things to be grateful for. Eduardo has come out of his coma. After surviving the night of hell, the night they said it would take a miracle to survive, he is still with us. They removed a large portion of his intestine. As I understand it, he has a colostomy. He is finally taking in nutrients which were so desperately needed.

The experts I talked to tell me this a stop-gap. If Eduardo is to survive he needs chemotherapy, he may need a bone marrow transplant, and he will certainly need extended hospital care to guard against infection. Most of this he can best find in the US. Alas, the US public has been unwilling to hear Eduardo's story. I am not going to make an appeal for help, donations, things to sell on ebay. All I ask now, for those few who stumble upon this blog, is your prayers.

I will keep you posted as to how Edaurdo is doing. I would love to hear about your personal struggles, your points of view, what worked and did not. I would love to hear about how you feel if your child is suffering too. In unity we find serenity, even when it does not comport with our wishes.


Uncle Tim

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