HLH Syndrom and Eduardo Salazar, A Child from Villa Union Durango, Hope Through Prayer,

Edaurdo Salazar Rivera is an 11 year old with Hemophagocytic lymphohistiocytosis or HLH syndrom, a frequently terminal, mostly child hood disease. While it is not a common childhood illness, when it strikes it is frequently fatal.

One of the first medical questions is whether the syndrome is passed through family lines. This is not a heredity trait one wants to have. Those who acquire this childhood disease trough heredity have substantially reduced survival chances.

Children with HLH Syndrom acquired through infection have a higher chance of recuperation. It is termed as a secondary infection because the HLH syndrom is secondary or brought on after infection, frequently through the Epstein Barr virus. The Epstein Barr Virus is a form of herpes, HHV-4. Nearly 95% of all people in the US have herpes HHV-4. Herpes acquired in adolesence is usually passed as mononucleosis.

While most of us have the Epstein Barr Virus, HLH Syndrome is not an illness you can catch. It appears there must be a genetic predisposition. Once the underlying infection is resolved the HLH may go into remission.

A great source for information for Hemophagocytic lymphohistiocytosis can be found a: http://www.histio.org/site/c.kiKTL4PQLvF/b.1851483/k.7487/Hemophagocytic_Syndromes.htm

Eduardo Salazar appears to have secondary HLH. My friend Erin Kennedy of Castle Rock, Colorado, along with the Salazar family, have been trying to get Eduardo to one of the few medical specialists associated with HLH Syndrome. This is why we reached out to the powerful Latino media outlet Univision, and some of their popular hosts, El Gordo y La Flaca and Piolin Por Manana. Eduardo Sotelo has a heart of gold and we thought our Eduardo's struggle might hit home for Sotelo.

Every child deserves the right to live. Children from Villa Union, Durango, Mexico are no exception.

Tim Paynter is an attorney and civil rights advocate fighting for equal treatment for all, justice through government and children's rights.

Sleep Well My Sweet, All Children Count, Eduardo

After going into surgery a variety of times trying to stop hemmorahging, Eduardo has been placed into a drug induced coma.

Our pleas for help have gone unheard, sad to say. There has been no response for this needy child with HLH, a mostly children's disease. On today's day of grace, day of thanks, I am grateful Eduardo is with us at all, even though he is not awake.

The family remains desperate for your prayers. This is a family that is pulling together in crises. What greater crises than having your young son at risk? If you know how to pray, I hope you pray with all your might, that God's will be done, and if that will is to return Eduardo to us, then we shall be grateful, and if that will is to take Eduardo from us, then we too, shall remain grateful.

The family is desperate for financial help. They would still like to bring young Eduardo to the US where he can get the best of treatment. Please email me if you have intereest.

God bless, dios te bendiga,

Tim

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We Are Desperate, Can You Help? Call for Eduardo's Life!

we are aggresivelly seeking media support and help. The family, and Eduardo are running out of options. Here is the press release we put out. Are you willing to help us contact your favorite media star and tell them about Eduardo. Do you care


Eduardo Salazar Rivera is on his death bed. He has a chance but needs to see an expert right away!

Eduardo’s family and friends ask your help in bringing this to the attention of the Latino Press. The family is optimistic the powerful wheels of Univision and the radio show host Piolin Por La Mañanas might have the clout to rush this child through immigration on a medical visa and open the doors for community funding for this boy who wants to be a soccer star.

"We are desperate" said family friend Tim Paynter, an attorney in Denver, CO. "What would you do if this were your child? We are out of options and we need your help!"

Paynter says he cries almost every day. He says he writes daily on the net asking for help. He has sent emails to Eduardo Sotelo, Piolin Por La Mañana, published on craigslist, word press, blogger and blog.

“No one takes it seriously.’ Paynter said. “No one cares about this little kid! He is passing blood, the doctors don’t know what to do, his Mother Maria Salazar Rivera is frantic... How do I get someone to care?”

If you are willing to help, try 1-888-474-6546 for Piolin, or listen to his show for the number.

This email probably works:
Sergio, station manager, piolinporlamanana@univisionradio.com

These might work, too.

elshowdepiolinporlamanana@univisionradio.com

elshowdepiolinporlamanana@univision.comor

“We are also looking for help from other media sources. If you know someone in the media, or someone else that can help, are you willing to make one phone call? One Phone call” Paynter said crying. “We can’t even get people to make one phone call. Hurry. This kid is in trouble!”

Tim Paynter
English Representative 720 951 1700
Spanish Representative 303 594 3035

"Eduardo's future is in your hands. Without your help we don't know what we are going to do."



Press Release: Friends of Sick Child Ask For You To Call Piolin For Help! Make a Phone Call!




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Tough News, Big Heart, Paisano Luchando, Que Hare'

Jesus Christo, I don't have writer's block, I just don't know what to say..My heart is heavy, bad news, can you pray?

The family called last night, terrified for thier little Eduardo. He had lost a pinto of blood, not sure what exploratory surgery found, they are not either. He is out, there is a slight improvement, very slight. We know every day this light of Mexico spends in the hospital, is a big chance less he walks out.

Miracles happen, God has his plan, what miriacle does he have in mind for Eduardo?

Censored 4 Asking Tough Questions

Censors Gag Tough Reporting

Part of the process of living is leaving your mark on the world. It is not an ego thing, from my perspective. Some of us leave a positive mark; others a negative mark. A wise person knows he can make a difference and he does his best to make that difference.

Eduardo Salazar Rivera is fighting tough odds. He has an illness that strikes one in a million, mostly children. Without treatment most die within 2 months. Those who get treatment with Gamma Globluin alone have a 20% survival rate; those who get the works, chemotherapy, immunotherapy, professional medical care in a hospital setting-have a 70% chance.

As if Eduardo does not have the deck stacked against him, there are three more factors working against Eduardo:

Hi is poor, so he does not have access to traditional medicine others do;

He is a Mexican National;

He is a Poor Mexican National in Mexico instead of the US.

In order to give Eduardo the best chance possible he needs the best medical care money can buy. Isn't that what we all want for the important people in our lives?

In order to get the best doctors Eduardo Salazar must have access to funding. Even if the entire procedure were free, it costs the family a lot of money to take care of a critically ill child. There are other brothers and sisters who need help. Care takers need taking care of, too.

I have hit a brick wall on getting help for a Mexican national in Mexico. Our neighbors to the south have not learned how to care for the poor. It is beyond our ability to change that. If Eduardo were simply Hispanic in the US, then there would be a lot more solutions.

There would also be more solutions if Eduardo were a Mexican National in the US. At least we would not be fighting the visa process. While we would still have funding issues, some organizations like the Catholic Charities are willing to help children in their region.

So that is what I said. Let's just say the message was not well received.

I appealed to the conscience of the American people and of the Latino press with disastrous results. Face it, Blogger is about one thing: namsy pansy reporting, a million articles on how to write a blog, be a good lover, make money...but the moment you become controversial in your writing, blogger boots you off of the bus.

That is what happened here. Where is Eduardo Sotelo and Univision with its most popular radio show Piolin Por La Manana? Where is US corporate sponsorship like Apple? Where are my fellow Americans? Where are all of the well to do who could come to Eduardo's help but won't?

Does Eduardo deserve the right to live? Would he deserve the right to live if he were your child?

Will you help?

We need volunteers to bring this case into the public. We need money to pay for medical expenses, legal expenses, travel and the lsit goes on.

We need people from all races and all nations to pull together and help save dying children, one child at a time.

When I ask these questions then the censors go to work. The ugly American, who has more than enough, won't help, and he does not want anyone to know it. That is part of the problem with Eduardo's fight. The true story about the rich American, the poor Mexican, never gets told.

Will you help?
Send your donations of money or things to be sold on eBay to:
Tim Paynter
120 South Kalamath St.
Denver, CO., 80223

Write or call if you are willing to donate time or can help us make media contacts-
Tim Paynter 720 951 1700, in Spanish 303 594 3035

Watch Free Press Release, at least they have not been censoring my news posts:

Free Press Release at least puts my stuff out. Be sure to watch for updates from them!

Free Press Release

Eduardo Hemorhages--Operating Room In Prep

Geeez! Why does it have to be this way?

There was just a frantic call from Mexcio. Eduardo is hemorrhaging and the operating room is being prepared as I am writing this. The family is frantic, tears, disappointment, wishing it were not so, desperation, Christ not sure what to say. I know saying how I feel, or trying to imagine how frantic parents feel, is futile. Words never give it justice.

This is a story of a young man fighting for his life. He has HLH, a rare autoimmune disorcer. As with so many battles, sometimes it just seems a losing battle. If you beat one thing then there are five more coming at you.

Hope, faith, surrender, wiilingness to accept positive and negative out comes without pretending to understad why either must be so...

For those of you who have young ones fighting for their lives, you know how this is. Please keep 11 year old Eduardo Salazar Rivera in your prays this Saturday morning. You can write him and we will get the message to him, eduardoenvivo@gmail.com, that translates to Eduardo en life!

Don't Worry Be Positive!

Don't worry, be positive!

This has been a tough week for Eduardo Salazar Rivera who lies in the General Hospital in Durango, Mexico, fighting for his life.

Eduardo has a rare disease called HLH which afflicts mostly children. Survival rates are marginal unless treatment is begun quickly. Even then, we lose way too many little ones.

Eduardo has finished his course of five days of Gamma Globulin, an immune drug designed to help him ward off the cancer-like illness he has been fighting. If he is really lucky he will make a full recovery, the illness will go into remission, and he won't need the next treatment...chemotherapy likely followed by a bone marrow transplant.

If Eduardo is not lucky he is going to be really Unlucky. A lot of people with hearts of gold have been beating their heads against the wall trying to figure out how to get Eduardo the next phase of treatment if he needs it. There won't be a lot of time to figure it out. As things stand now, the $500,000 needed is so far out of the reach of everyone I know that is is not an option for Eduardo.

I have spent a lot of time being worried this week and not very positive. Watching a broken health care system, both in the US and in Mexico work, or better said, not work, has been frustrating. The cost of taking care of young lives is so high the solution society has worked out for us is to toss these little people aside as if they don't count.

Every child has the right to live.

So that leaves me with few options. Let go, let god. Accept the things I cannot change. Pray that God's will and my will are the same, and be prepared to accept God's will if they are not.

Don't worry. Eduardo, Be positive~

God speed, God Bless!

Donations Needed-Cash or Goods! Cancer Leukemia Chemo eduardo sotelo charity auction ebay, hp mark hurd

Everyone has something they don't want. Help save a life!

That usually does not apply to cash, but sometimes. If you are critically ill, for example, and thinking about what to do with what you have, this might be a great place to put it. Help us save Eduardo's life!

We need $500,000 for medical expenses-chemotherapy, bone marrow transplant, extended hospital stay, gamma goblulin, eezzz and we need it as fast as we can get it!

Little Eduardo Salazar Rivera has HLH, which is a rare " orphan " disease sometimes associated with Epstein Barr Virus. It is fatal in many cases. Eduardo needs emergency treatment and he has no way to pay for it.

That is where you come in. Assuming you are not willing to give up your cash, and you are not planning on dying soon, then that leaves a third option:

Give us something you don't want or don't use so we sell it on ebay!

Include your email address and we will tell you when your item is scheduled so you can see how much it brings!

Good items might be a gold necklace you don't wear, a digital camera, a car, boat or airplane, the possibilities are endless!

All it needs to be is something that makes sense to sell. We don't need people dropping their junk at our door, but on the other hand, one man's junk is another man's treasure!

Will you open your heart to an 11 year old boy whose only crime in life is wanting to be a soccer star?

Mail or drop your donation of money or goods:
Tim Paynter
Attorney at Law
120 South Kalamath St.
Denver, CO., 80223

720 951 1700.

Thanks, friends of Eduardo Salazar Rivera.
edaurdoenvivo@gmail.com

We have not heard from Eduardo Sotelo, Piolin Por La Manana, CNN, Univision, HP, Mark Hurd, or any of the high up guys to whom we have appealed for help. I guess they just don't care.

Every child has a right to live. How about Eduardo Salazar Rivera?

Everyone Counts, Every Child Has a Right To Live! Where is Univision, Piolin, The Conservative US Press?

"Every Child Has A Right To Live"

"I am pretty broken up" said Denver attorney Tim Paynter. "I have been trying to help a little kid in Mexico suffering from a rare, often fatal disease."

According to Paynter, the child might die if he does not get help soon.

The 11 year old boy, who is lying in a hospital in Durango, Mexico, is the victim of Hemophagocytic Limphohisti0cytosis Syndrom, or HLH.

Paynter says he consulted with experts in the field. They said the child needs aggressive treatment or he may die. In this case, aggressive treatment includes chemotherapy and possibly a bone marrow transplant.

Hospital General De Durango in Mexico wanted payment in advance for an expensive medication called gamma globulin. The family forked over $400 a day for 5 days in advance, on threat of the child being sent home to die.

"Unless he receives help Eduardo will probably die."

Paynter said the expert from the Histocytosis clinic in Cincinatti, OH, which is likely the foremost clinic in the United States for HLH, said Gamma Globulin alone is rarely adequate to preserve life.

"Treatment could cost hundreds of thousands of dollars."

"After talking to the expert, yesterday, I found out treatment could cost hundreds of thousands of dollars!" My lord Paynter said, a tear falling from his eye. "We thought we were doing great coming up with over $2,000 in a few days."

Paynter said he has been frantically knocking on doors full time during the past week trying to find funds for the child.

"Every door I knock on gets slammed in my face!"

Paynter said he called Catholic Charities when the family needed the initial $2,000.

"We only help people in this country"

"Sorry, we only help people in this country" she said.

Then he called the Good Will, was referred to the Salvation Army who sent him back to Catholic Charities, Then he called the Shriners. They don't do this kind of work and if they did, it would be in Mexico for a Mexican boy.

"'I have treated a lot of Mexican children' the guy on the other end of the line told me defensively. He did not get the point of my post."

The guy with Angel Flight did. Angel Flight are volunteer pilots who transport sick people at no charge.

"We don't knowingly transport illegal aliens" the voice on the other end of the line told Paynter.

"At least that guy understood I was talking about Mexican nationals in specific, and not Hispanics in general."

"It was the presumption that the Salazar's were illegal because they are Latino and coming from Mexico that bothered me." said the attorney. "I am sure the chap had the best of intentions. He is so conditioned by the plague of hate that he could not see how his assumption was offensive."

"I can't even get the Mexicans to give to Mexicans." Paynter said and then explained his play on words.

He says Mexcian Nationals who have immigrated here legally won't help. He said he has been knocking at the door of Piolin Por La Manana, the most popular radio show host in the Latino world, to no avail.

"To be fair to Eduardo Sotelo, the person behind the Piolin personality, I presume I have his company email, which is another story. I also presume he read the email. Here is a guy who advocates for Latino sick and oppressed and I can't get a response."

The attorney added, to be fair to the community that knows the Salazar family, Latinos and others, the giving has not stopped. If they know us they give. Why is it poor people are the ones to always give?

The Denver attorney has sent emails to Mark Hurd at HP. No word. Can you imagine what Fox News, Sean Hannity, Bill O'Reilly and god forbid, Lou Dobbs would give? Nothing. What do you think?

"No one cares about a Mexican."

The American public says it does not discriminate against Mexicans. Paynter says what we really mean is we don't discriminate against Hispanics. But discrimination against Mexican nationals who are in this country is rampant. That is what we call discrimination based upon national origin.

"You can't discriminate against either one, race or national origin."

"So why should we discriminate against a terrified mother as she holds her child, screaming in pain, just because they are Mexican nationals in Mexico? Maybe we can't save every child, but we can save Eduardo Salazar. Maybe tomorrow it will a child near you who needs the help.

"If You don't like the title, why not get out your check book and help Eduardo?"

"If you don't like the title to the piece, then why not get your checkbook out and help this kid out? If you don't do it right now you will probably forget..."

"You see" Paynter said, finally relaxing as he sat back in his char, "When it comes to our children, everyone regardless of race or nationality has something in common. We agree, Every child has a right to live. Especially if that child is mine."
Donations can be sent to:
Tim Paynter
In trust for Eduardo Salazar Rivera
120 South Kalamath St.
Denver, CO., 80223

If you can't send money, why send something you don't want, and we will put it on eBay?

,,,,,,,,

Just a note, I am interviewing myself in this piece. I have not found anyone who has the guts to do it for me, or for the country.

Good man Sad Man--News From Eduardo-- Piolin Silent

Well.... Eduardo is responding to therapy with the gamma Globlulin. Great! Hooray!

I emailed a specialist in HLH today. She told me gamma globulin is a reprieve. Without intensive therapy there is little chance. They have room in their clinic, but, alas...it is not free.

We are talking $300,000 to $500,000 to save Eduardo's life.

I cried. Then I prayed.

What is more important, my house, or the life of a little boy? Geeez, life can be so unjust.

The pearl in the conversation is the US specialist does not think the symptoms sound like HLH. Wow, that would be a godsend!

Meanwhile, not a single person has responded to our plea for help. Sure enough, we have not gotten a response from Univision or Piolin, or Eduardo Sotelo, or even one single person we did not already know.

I guess I need to get to know more people!

If you are willing to give, here it is: You can send unwanted but nice items for our internet auction or send bucks.

Please mail your item for our auction for Eduardo or a check to:
Tim Paynter
Attorney at Law
120 South Kalamath St.
Denver, CO., 80223
720.951.1700

When people we know hear about Eduardo they immediately reach into their pockets. We don't even have to ask.

Why is it, the poor people give?

Stay tuned if you like what you read.

Why not check out our ads. It is important to support our sponsors...even if they don't give us money we get a blog.

What I don't understand is, Why doesn't America care about a little boy in a far off place called Durango, Mexico?

Marked Iimprovement-US Citizens Stingy

I was relieved to hear my new friend in Mexico is doing a little better. He has been fighting against all odds. We are concerned he is not getting enough treatment and the little better that he is doing will not be enough.

Friend Erin Kennedy from Castle Rock, Colorado, has been working non-stop. She has been consulting with doctors at Children's Hospital in Denver. There is talk of a medical visa. We are lucky to have Erin on our side.

"There is talk of a medical Visa."

I was looking at Eduardo's picture today, and he is so thin. This is a kid that had a lot of energy and a lot of heart. I have a difficult time understanding why god makes these decisions, but I know it is not in my hands.

I have a harder time understanding why my fellow Americans, especially the people of Denver, have been unwilling to respond. I kind of understand it in a way. I have taken the same attitude many times. I was afraid of getting scammed, I was selfish and justified being stingy because I did not know the victim.


"I have a hard time understanding why my fellow Americans, especially the people of Denver, have been unwilling to respond"


When I say people of Denver, I am talking about those who do not know us personally. Those who are familiar with the Salazar family have been very generous. They understand how serious this is and how much we need the help. The problem is, most of them are poor people and their is a limit to how much they can give.

Our latest thought is an Internet auction. If people don't have money they surely have something they don't want. I spoke with the eBay on-line help people and for the first time I can say they were zero help. After getting transferred five times I finally gave up. At least I have know we can't use the word charity. Heck, this just came up, how would we be a charity already?

"If people don't have money they surely have something they don't want and can give."

I am a Strong believer in higher powers. I don't know what my higher power wants from me, or for Eduardo. I don't know what the future holds for anyone. If God wants Eduardo, as he will want all of us one day, then so be it. I must do my part, and we are all asking others to do their part. Maybe that really is nothing. What do you think?

Items For Auction Needed 4 Eduardo-11 y.o. Desperate for help

Eduardo Salazar Rivera is a lively boy who is facing a difficult future. He has an illness called HLH, an autoimmune disease which is treated like cancer. His medications have been costing $400 a day.

"We would like to have a fund raiser auction" said US friend and attorney Tim Paynter.

"We are seeking items in good shape which can be auctioned off on the Internet"

Paynter said cash gifts have been slow in coming for the 11 year old who dreams of being a soccer star. But who does not have an unused necklace, or a digital camera?

Paynter said US friends are asking you to mail your items to his office in Denver, Colorado. The items will be sold on the Internet, either on ebay or via the net using an auction company using Proxbid

"Be sure to include your email with your gift" Paynter said. That way he can notify each person when their item comes up for sale.

A lot of people are short of money Paynter indicated, but who does not have something in good shape which they don't need?

Paynter said they will also accept vehicles and boats but want to sell those where they are.

"Why not write Eduardo in person?" eduardoenvivo@gmail.com

Send gifts to: Eduardo Salazar Rivera, c/o Tim Paynter, 120 South Kalamath St. Denver, CO. 80223. If it is a cash give be sure to put the word "Attorney Trust Account" on the check. "We can't let this child die" Paynter said. "All he wanted was to be a soccer star!"

Tests Tomorrow--Results Mixed, Response Sad

Eduardo has tests tomorrow to see how his initial treatment has effected the uglyillness that is infecting his body. A more sophisticated program would have given Daniel a lot more treatemnt in order to kill the nastiness that threatens his life.

Our appeal for help has, for the most parts, fallen on deaf ears. Eduardo Sotelo, Bull Hurd, Cu Cui, Univision, HP have all declined to take any real interest in the story of an 11 year old future soccer star with life threatening challenges in front of him. Too bad.

We will have to wait for the next day to find out what is recomended. Meanwhile, the family struggles under the weight of a sick boy while trying to maintin the famiily at the same time. Please keep him in your prayers as the media has not.

Nino de 11 Anos de Edad Espera a que la Medicacion Para Salvar Su Vida

Un Nino de 11 anos se encuentra en una hospital en la ciudad de Durango, Mexico. La familia hizo una llamamiento a la prensa de los EE. U.U. como Eduardo Sotelo en la programa Piolin Por La Manana, y Cu Cui. La familia tambien esta pidiendo ayuda de todas las razas para salvar este hijo valiente.

Eduardo ha HLH, un enfermedad de auto inmune poco comun. El sistema hospitalario de Mexico no es financiado a dar medicamientos costoso a uno hijo pobre. La medicina es dificl a conseguir. Cuando consiguen el costo es $400 diario.

Hay poco expertos en la enfermedad HLH en el mundo. Hay clinicas in E.E. U.U., Suecia y Aregentina. El tratamiento que recomendian es mas agresiva que en Mexico. Las posibilidades a recuperar son 20% en un tipo de tratamiento, y 70% en la clinica de especialistas.

Amigos en el E.E. U.U. Tim Paynter and Erin Kennedy esta hablando con la familia Salazar. Quieren llevar Eduardo a los Estado Unidos. Paynter es un abogado en Denver, Colorado. El dice que se llevera gente poderosa para abrir la frontera raidamente. Eduardo no tiene tiempo para esperar.

El equipo de el Piolin Por La Manana cuenta con expertos en inmagracion. Ellos pueden se capaces para obtener una visado rapidamente por Eduardo. Pero no ha respondido a la peticion de Eduardo por ayuda. Otros personas de la prensa pueden estar effectiva tambien. Pero nadie quiere ayudar.

Es triste este hijo de Mexico no se puede recibir el tratamiento que se necesitan. El no ha hecho nada mas que quiero estar una estrella de football. Quien sabe, va estar famoso como Sasa Salcido?

Por favor, si estas dispuesto ayudar, envie su donacion de cualquier cantidad a:

Tim Paynter

Attorney Trust Account

For Eduardo Salazar Rivera

120 South Kalamath Street

Denver, CO., 80223

Por que no enviar tu mensaje a Eduardo? eduardoenvivo@gmail.com

No Response From Famous Radio Show Host

I must admit, our response for a young kid who is gravely ill and needs help has been at best, dismal.

I sent out a general appeal on the Internet and we are getting no response. No interest, no one cares about Eduardo. Why the apathy?

I sent a persona email to Eduardo Sotelo, but have not heard a word back. Sad to see that. I have had a personal experience with Eduardo. I know he has a good heart but maybe the money got in the way?

Eduardo Salazar Rivera is an 11 year old with HLH. He was just diagnosed with this ugly and rare illness and is in a battle for his life. His parents must figure out a way to come up with an immense amount of money or they could lose Eduardo.

HLH is an autoimmune disease which strikes 1 in a million children. There is an aggressive treatment for this illness, but it costs a mint and likely is not available in Mexico.

Eduardo's friends in the US, Tim Paynter and Erik Kennedy want to give Eduardo the chance to come here. There are also HLH clinics in Argentina and Sweden. The disease is so rare it is hard to find a hospital with doctors who really know their stuff.

Meanwhile, Eduardo has marginal improvement after the initial administering of Gamma Globulin. It is not enough according to the HLH people. But I am not a doctor, I am a guy with a big heart and a lot of prayers. I hope you will join me in those prayers because it seems like god is the only one watching out for us, Piolin isn't, will you?

Please send your donations to
Tim Paynter
Attorney at Law
120 South Kalamath Street
Denver, CO., 80223

Keep following us on "Free Press Release" as these guys seem pretty open to getting the information out. We just got censored for saying what is the truth.

Their general webpage is:


Everyone has something they don't want. If you have a "thing" send or bring that, we will stick it on eBay. You can watch to see how much it brings!

The latest news, Eduardo is out of surgery after hemorrhaging last night. I can see the faces of mom and dad as they agonize over the terrible struggle thier young one is fighting. Please keep this kid who dreams about being a soccer star in your prayers and meditation. Right now there don't seem to be many other options!

Guarded Improvement - Funds Still Needed

I am happy to report young Eduardo Salazar Rivera is continuing to improve tonight in the Children't Hospital in Durango. I got off of the line with one of the relatives and she sounded encouraging.

Eduardo has started on his treatment of Gambloulin which he is taking to combat his fight against HLH, a hereditary disease which strikes mostly those under 18 years of age. Eduardo fell ill with the vicious syndrome about 30 days ago. The time before onset and death is usually 30 to 60 days, according to sources. It appears he may have gotten to the hospital just in time!

Our concern for Eduard is his continued access to medical care and to the medications he needs. We pray for his cotinued improvement and ultimate recuperation. Our concerns, of course, are for a relapse, which often occurs in many illness after the patient initially ralley. Let's pray that is not the case for Eduardo.

The family is once again pondering whether it is wise to bring Eduardo to the US, and we respect their decision. Whether or not he comes here, he has a tough road ahead of him and will need your continued support.

Send your emails to eduardoenvivo@gmail.com. We are actively seeking donations to assist Eduardo in the high cost of medication and medical care. Please contact us if you are willing to donate.

Uncle Tim

Gamma Globlulin Helping -- Money is Short Family In Crisis

The response for help with Eduardo Salazar, a victim of HLH, a rare childhood disease has been slow. For whatever reason we have been unable to capture the hearts of the Amercian people for a bright little boy fighting for his life in Mexico.

The good news is Eduardo is responding to the Gamuglobulin. The results are encouraging but because he has an underlying disease which is a derivitive of the Epstein Barr Virus, as we understand it, experts in HLH recommend a more aggressive therapy regimen. That will be very expensive.

The first $400 needed for his treatment was easily raised. With each passing day getting the $400 together is increasingly difficult. We would like to help his family out as well. They are wonderful people trying to care for a terribly sick child while putting food on the table for the rest of the children.

We are hoping to bring Eduardo to the US where he can get more advanced care. That is an expensive proposition, and requires some expertise we may not have. Getting through immigration is never easy. I am sure it can be done but it must be done quickly in Eduardo's case.

If your heart goes out to this little kid who one day wants to be a soccer star then send me an email. We need money, of course. We also need volunteers to bring the message to other compasionate people, to help us with Eduardo, and to say a little kid in a far away place counts, too.

Funds may be sent to: Eduardo Salazar Rivera, c/o Tim Paynter, 120 South Kalamath St. Denver, CO., 80223.
Are you willing to volunteer? Send us a note telling us what you can do! Eduardo would love to hear from you as well, if you can't speak Spanish we will have it translated! eduardoenvivo@gmail.com - translates to Eduardo in life.

The follwing is a picture of the chapel glass and words of inspiration at the Children't Hospital in Denver where we hope to bring Eduardo.

Spirituality is a pathway to meaning, hope and inner peace. e

11 Year Old Eduardo Waits for Lifesaving Meds - Can Piolin Por La Manana Help?

11 year old Eduardo Salazar lies in a hospital bed tonight waiting for his friends in America to raise money for medication he needs to live.

Family and friends say withoout the help of someone with a lot of clout like Radio Star Piolin Por La Manana, his chances are poor.

"It is an illness that hits one in a million" said close family friend Tim Paynter, an attorney in Denver, Colorado.

"We are devastated it had to Eduardo." Paynter said.

The little boy who once had bright eyes and big dreams of becoming a soccer star shifts uncomfortably in his bed.

"Mom, when can we go home" he murmurs in a weak voice.

Eduardo will be going home very soon if his US friends are not able to come up with the $400 a day Eduardo must have". The Mexican health care system is not funded for the designer medication Eduardo needs.

"Maria Salazar Rivera is an icon to me", Paynter said. "She has lived a tough life and she never complains. When things are hectic she stays calm, ready to meet each new challenge head on. This challenge is the hardest one ever."

"We will take you home soon" she replied hiding back the tears she knows will worry her young son.

"When we got the diagnosis, Tim translated it using Google Translator." Kennedy continued. "It took us a long time to get an idea about what little Eduardo is facing."

How about Hemophagocytic Limpohistiocytoces? If that does not mean anything to you, don't fret. Most people won't recognize the name.

How about HLH? Most people have not heard about that either.

How about "Epstein-Barr Virus-associated HLH is almost universally fatal if untreated..."

"We knew Eduardo was really sick", Paynter said, tears welling in his eyes. "We didn't know that he could die within the next month or even days without treatment!"

HLH is a rare syndrome that takes two basic forms. One is hereditary and the other infectious. Gamugobulin is the drug of choice but when the infection includes the Epstein Barr Virus, the survival rate is 20%, according to sources. With a cocktail of medications his chances dramatically improve.

"We would like to bring him to the US" said Paynter.

"I spoke to an expert in childhood diseasess" Erin Kenndy said. "He recomends a transport to a hospital that specializes in this illness, or maybe even Children's Hospital in Denver, Colorado."

Paynter and Kennedy say if you don't have money for advanced medicine in Mexico they send you home to die. Eduardo was about to be discharged when Paynter and Kennedy heard the story through a relative living in Denver.

So Eduardo's Friends starrted looking for funding. "We are hitting all of the bases", Erin said. "We all pitched in and now we are asking the community for hep."

Kennedy said Eduardo has enough money to pay for a day or two of treatment. They want to bring Eduardo to one of the few clinics that specialize in HLH. The treatment therapy in Mexico appears to be the minimum therapy recomended even at $400 a day. Eduardo's chances increase significantly with advanced medications.

It would take the clout of someone like Eduardo Sotelo, they call him Piolin Por La Manana, to help raise the money Eduardo needs, plus clear customs according to Paynter.

"My colleagues and I can make the case but it was the expert legal team and clout of television station Univision that kept Eduardo Sotelo in the country." Paynter noted.

Paynter was the "gurro expulado" on Piolin's march on washington. Paynter says secuity guard Rafa did not believe a guero could be on the pro-immigration side and the left him at a truck stop in Amarillo, Texas.

Bowing his head, Paynter said through his tears,

"We may not have the ability to raise money and open the border fast enough"

Paynter went on to say one never knows when a ittle boy is destined to find a cure for cancer when he grows up, or to be an icon for peace like Ghandi, or to help convince Mexico's mega-billionairs of the wisdom of including the poverty stricken in the Mexican economic structure.

"Who knows" Paynter said, clearing the tears from his cheeks, "We are asking the Latino media for support including another famous radio star Cu Cuy for help. "maybe Eduardo will be a famous radio star like Piolin Por La Manana!"